Bummer

Andy and Laurie went to UCSF as instructed. After a long while it was confirmed there was no need for the visit. They spent a day on the road, money and more energy than Andy has and he is very upset. He feels horrible and exhausted and his blood is hovering just above the threshold that would require another transfusion imparting they get home safely and that Andy starts feeling better. Also, the PET scan will be sometime in November. A day of disappointment

Back to UCSF

Turns out Andy needs to spend Friday at UCSF as part of the study protocol. We really were unaware until they called yesterday. We will need to figure out transportation and other details. Got to look at this as progress--one step closer to the point of being declared cure!

Wed Oct 10

Another day of blood work and another neupogen shot. No g I issues for about 12 hours and staying on bland diet. Andy seemed a lot more upbeat, even given the onset of the bone pain, and is anxious for "what's next". He's trying to be better about taking all the medicines to help with both pain and potentially even some sleep! The visits from last weekend by fantastic,caring and dedicated friends continues to buoy him up.

Tuesday

Andy back at local hospital with blood pressure issues. His throat is raw as well. We will see what they say

Monday

Andy felling very sick. Local hospital did blood work and put him on special diet for lower g I symptoms. Turns out potassium low so new pills added.