Thursday, December 13, 2012
Appt for surgical consultation is set
We have an appt for Jan 4 to meet with the surgeon and discuss the biopsy. Will provide an update at that time!
Wednesday, November 28, 2012
PET results are in
The PET showed no change from before BEACOPP and after ABVD. That means the chest tumor seems to still be alive. There is a chance the PET is wrong so a biopsy is being planned. This takes special surgical skill given the location. Timing tbd. If it still is alive a new chemo regimen specific for Hodgkins will start. This is outpatient every 3 weeks for 4 times with a PET in the middle. We need to stay focused on the cure! The timeline changed but nothing more.
Friday, October 12, 2012
Bummer
Andy and Laurie went to UCSF as instructed. After a long while it was confirmed there was no need for the visit. They spent a day on the road, money and more energy than Andy has and he is very upset. He feels horrible and exhausted and his blood is hovering just above the threshold that would require another transfusion imparting they get home safely and that Andy starts feeling better. Also, the PET scan will be sometime in November. A day of disappointment
Thursday, October 11, 2012
Back to UCSF
Turns out Andy needs to spend Friday at UCSF as part of the study protocol. We really were unaware until they called yesterday. We will need to figure out transportation and other details. Got to look at this as progress--one step closer to the point of being declared cure!
Wednesday, October 10, 2012
Wed Oct 10
Another day of blood work and another neupogen shot. No g I issues for about 12 hours and staying on bland diet. Andy seemed a lot more upbeat, even given the onset of the bone pain, and is anxious for "what's next". He's trying to be better about taking all the medicines to help with both pain and potentially even some sleep! The visits from last weekend by fantastic,caring and dedicated friends continues to buoy him up.
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